Aug 16, 20222 minOne step at a time“Here,” an ICU nurse said as she handed me Ramón’s Fitbit. He’d just been situated in the ICU after his cardiac arrest. While they were...
Jul 27, 20221 minRole reversalEXTRA! EXTRA! I recently wrote a guest post for the Cystic Fibrosis Foundation. Here's where to find it: Role Reversal: When Someone With...
Jul 20, 20221 minDespite the dateApril 26. I've said that date aloud many times throughout my life. As a perpetual patient, I divulge my birthday at doctor visits, as I...
Jul 13, 20222 minTrial and errorWhen I took my first dose of Trikafta in March 2019, I felt, as the pills slid down my throat, that my life might be changing. And change...
Jul 1, 20222 minA joyful heartWhen I sit down to write something grief related, I occasionally feel a twinge of worry. I’m concerned that by continuing to document my...
Jun 21, 20223 min[updated] Yes, I want a Fanta (Fanta). *tears*The original post has been updated below. It's no secret that I write a lot about grief — it's been a significant part of my life. Today,...
Jun 16, 20222 minCircle back aroundThis beautiful ring used to adorn my husband's hand, but now it’s in the bottom drawer of my bedside table. When Ramón was going into the...
Jun 7, 20221 minDown here on earthI cut my left hand this morning. It was nothing serious, but it warranted the use of antiseptic spray. As I got the bottle out of the...
Jun 1, 20222 minNo caveat(s) neededToday, as I sat on a bench in the backyard, I was overcome with gratitude. I admired a happy Noodle, a beautiful sky, plants in bloom,...