May 12, 20191 minBuckle up, folksWe're amazed by the outpouring of love we've received over the past several days. We hope to thank everyone individually, but, in the...
May 9, 20191 minHappy birth-of-a-new-chapter day!What began as Ramón's birthday ended as the day he was diagnosed with cancer. While we knew May 7, 2019, would be a special day since...
Aug 5, 20172 minThe struggle has endedAfter a 22-year battle with cystic fibrosis, my friend Darcey passed away on Wednesday, August 3. I first met her when I was an intern at...
Jul 27, 20173 minEquality: Worth every pennyI have never considered myself a very political person. For as long as I can remember, I've always felt that politics were much bigger...
Jul 21, 20173 minWalking the pathThis photograph will be forever etched into my mind and my soul. The year was 1998, and I was at the annual cystic fibrosis camp, Camp...