Jul 21, 20202 minDay ???Many of you have followed our story and its constant ups and downs, particularly since Ramón’s chemo/radiation/transplant...
Jun 28, 20202 minDay +79: inTENSEI awoke this morning with a joyous heart, knowing that Ramón is waking up in a regular hospital room; he escaped the ICU! He required...
Jun 16, 20202 minDay +67: Smoother watersIt’s day +67 since Ramón’s transplant. Given that the first 100 days are critical, it’s relieving to know we’re two-thirds of the way...
May 26, 20203 minDay +46: Life is hard.The past several weeks have been, without a doubt, the most difficult time of my life. Each day, I have been hopeful that Ramón’s status...
May 17, 20201 minDay +37: DevelopingI love this picture from a friend's wedding in Charleston in 2014. It looks so effortless and obnoxiously lovey-dovey. In reality,...
Apr 5, 20201 minOne sunset at a timeIt’s our third night in the hospital, and we just witnessed the best sunset so far – a Fight Like Mike sunset. Throughout Ramón’s cancer...
Sep 19, 20194 minGrief: A hard pill to swallowGrief is very real. It’s exhausting, it’s sneaky, and it’s unpredictable. And it spans to all areas of loss – actual, perceived, or even...
Aug 5, 20172 minThe struggle has endedAfter a 22-year battle with cystic fibrosis, my friend Darcey passed away on Wednesday, August 3. I first met her when I was an intern at...
Jul 21, 20173 minWalking the pathThis photograph will be forever etched into my mind and my soul. The year was 1998, and I was at the annual cystic fibrosis camp, Camp...