GIRL DREW

GET POSTS BY EMAIL!

  • Let love win

    Let love win

    I’ve started to write countless posts this week—in my head, on my phone, on the computer. But every time I try to put my thoughts into words, it feels insufficient. Plus, no matter how I phrase things, I fear I might add to the growing sense of division, which is basically the antithesis of why…

  • Oh, [S]Nap!

    Oh, [S]Nap!

    This was originally written January 5, 2024, in case you were wondering if Noodle had been resurrected. I figure I’ll start sharing some of my writing that would otherwise go to die on my computer. How lovely is an afternoon nap, especially during the wintertime? I love cozying on the couch with the dogs, pilfering…

  • Catch me if I can

    Catch me if I can

    Each morning, I fill a mug with water and microwave it for my soon-to-be peppermint tea. As the water heats, I gather my nebulized meds. I move my therapy vest to my location of choice—lately in front of the fireplace. I grab my journal and a pen, then head back to the kitchen to prepare…

  • Decisions, Decisions

    Decisions, Decisions

    “I make good decisions,” I announced yesterday, surprised as the words left my mouth. I often categorize myself as indecisive, so I was taken aback by my own declaration. When I truly analyze the past, few bad decisions come to mind—except purchasing rollerblades from Amazon. I don’t think I make choices that leave people asking,…

  • 2.0.2.6

    2.0.2.6

    Welcome to 2026! If you know me, you know I loooove me some goal setting, some personal development, some psychoanalysis. The feeling of a fresh start excites me. Many nights (since coming off Trikafta), I go to sleep giddy about waking up the next morning—excited about what the day will hold. I love sleeping, but…

  • I’ll be home for Christmas

    I’ll be home for Christmas

    ‘Twas the night before Christmas when I finally broke freeTo finish healing at home with the help of IVs;I plopped on the couch, dogs wrapped in my legs,And waited for Santa to deliver my meds. Well. That was the least Christmassy Christmas ever, but I’m okay with it. My virus-like symptoms began in mid November,…

  • Ho-ho-hospital

    Ho-ho-hospital

    I just spent my seventh night in the hospital. I went to sleep when my IV antibiotic finished just after 11:00 p.m. Then the nurse came in to draw blood at midnight. Then the tech came in to get my vital signs at 1:00 a.m. Then the nurse came in to hook me up to…

  • Marry Christmas

    Marry Christmas

    A decade ago today, I woke up in a cabin in Blue Ridge, Georgia, ready to become Ramón’s wife. Typing “Ramón’s wife” still feels odd because, in many ways, it’s as though I never got to fulfill that role. It’s also weird because I tend to avoid titles, meaning I’d never really called him my…

  • Let it slow

    Let it slow

    I’ve been meaning to post for the last several weeks, and I’m finally here. I was mostly busy judging the writing ideas that came to mind and, ya know, getting in my own way—something I think most of us can relate to. I’ve also been pretty sick for the past several weeks.

  • You heard it here

    You heard it here

    Guess who was on a podcast?! Me! I recently had the opportunity to be a guest on Pam Baker’s podcast, The Lost Love Stories. Pam is a legend in the CF community. I feel cheesy saying that, like I’m trying to puff her up, but I mean it. Pam has two sons with CF, both…

  • Doggone it

    Doggone it

    Yesterday marked one month without Noodle. I felt her absence strongly on Tuesday when I returned home from a trip. Often, reuniting with the dogs is the highlight of coming home from vacation. But on a shuttle at the airport, it struck me that Noodle wouldn’t be part of the welcoming committee for the first…

  • Docu-Drama

    Docu-Drama

    One night last week, I decided to watch a documentary while I worked on a jigsaw puzzle. If that sounds nerdy, I agree—and I own every bit of it. I browsed titles, looking for one that sounded inspiring. I love all types of docs, but I wanted a boost that night. I landed on one…

  • Pole dancing

    Pole dancing

    A haiku:Drip drip drip all dayAlways dancing with the polePoison in my veins The countdown is on! I finish up IV antibiotics tomorrow, and right now it feels like I’ve never wanted something so badly in my life. Mainly I’m eager to get back to my normal sleep schedule—and ditch these side effects that make…

  • Adieu, Noodle Lou

    Adieu, Noodle Lou

    Growing up, I wanted a dog, but I feared the yet-to-be-acquired dog’s death. I suspect that’s not typical kid behavior, but my CF diagnosis instilled in me a death obsession. I grieved every loss I could dream up—even losses of relationships that didn’t yet exist. In May 2012, with Ramón’s encouragement, I decided I was…

  • Week 4: Simple September

    Week 4: Simple September

    Another week of Simple September has come and gone. Of all the weeks this month, this was the least simple, but hey. A lot fell beyond the limits of my control, and I handled it with more grace than I anticipated. Although the week’s events weren’t particularly simple, I didn’t overcomplicate them—which is all I…


GET POSTS BY EMAIL!