I awoke this morning with a joyous heart, knowing that Ramón is waking up in a regular hospital room; he escaped the ICU! He required some ventilator support the past few weeks to rest his lungs, but he built his way back up to breathing on his own. Ramón successfully completed a 24-hour breathing trial yesterday, so he got the all-clear to move back to the bone marrow transplant floor. Hooray! Early this morning, I woke up and noticed it was approaching 5:00 a.m. Well aware
This morning, day +76, while walking the dogs, my mom turned to me and asked, “Did I tell you about the dream where I was feeding Ramón mashed potatoes? He loved them.” Without hesitation, I responded, “Aww, that makes me happy.” Now, reflecting on our exchange, it’s interesting that my first response was one of joy. If Ramón was four months old, the conversation might have been commonplace, but he’s not. Several months ago, my mom’s dream would have been hilarious, yet now i
It’s day +67 since Ramón’s transplant. Given that the first 100 days are critical, it’s relieving to know we’re two-thirds of the way through the hard part of the transplant process. We received test results today confirming that Ramón has no evidence of disease, and his sister’s cells are still 100% running the show. These are important milestones, of course, but even the good news is tampered by the brain injury caveat. My phone often suggests that I glance back at photos,
Saturday into Sunday has become my toughest time of the week. It makes me reflect on "the night" when Ramón was feeling indescribably rough, culminating in the early morning loss of airway and subsequent cardiac arrest. It serves as a marker of how long it's been, and we're now officially in week 8. In the early days, this never entered my mind as a possibility. I was somewhat naively but optimistically expecting a call at any hour, letting me know Ramón was awake and asking
Day +54: Keep swinging June 3, 2020 You know when you’re just staring at the computer screen, deciding what to say to Hank Aaron? Do you not know that feeling? Because I do! Tonight, Hammerin’ Hank took the time to email us after becoming aware of our story. I was born a Braves fan, and Ramón grew up watching the games on TBS, despite living nowhere near Atlanta. Together we’ve gone to many games, made trips to Florida for spring training, and spent a good portion of last sea
My name is Drew Dotson, and my life has been anything but perfect, yet it's still perfectly beautiful. After growing up with a genetic disease, cystic fibrosis, I was blessed to meet an amazing man who loved me without bounds. Then he died.